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Emily's Hydrocephalus Journey
About Me | Favorite Links | Contact Me | Day by Day | The Entire Story

Welcome!

This website is deticated to my daughter Emily.  She was diagnosised with Hydrocephalus at 3 months old.  She had a shunt placed incorrectly by an adult neurosurgeon and I am just trying to locate her help along with informing people about her struggle as well as her progress.

I will attempt to describe Emily's struggles and spirit.  I will also provide links that have helped our family.  I will also be of support to those who need it.  We have learned alot of things in the past 2 years that we wish we knew when we started.  We were so unaware of the correct questions to ask and the proper investications you should do for even the smallest of medical problems.  Our ignorence we suffer everyday and Emily the rest of her life.

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What's New?

I will update this site regularly.  I will also post pictures and journal Emily's days.

Please get in touch with any comments or reactions to my site.